Infusion day is boring. People always say that they will come and sit with me and they never do it. I just sit here for two to three hours. I have Crohn’s disease. I have had Crohn’s for over twenty years. I have tried many treatments and have failed most so my disease is considered severe.
I have most of the bad effects of this disease including arthritis and fatigue. It is not just a poop disease.
I also have celiac and thyroid disease. Sometimes I feel like a walking disease. But I’m not. I am a paramedic, a mother, a grandmother, and a runner.
Like I said I have failed most treatments. So I sit here and get IV infusions. This is still considered non invasive. I’ve had surgery and may need more. I say may need because I basically refuse to get the MRE. This is a test that combines the worst of a colonoscopy and the MRI. It is basically a colonoscopy preparation with the enclosed MRI exam. Not so excited to get that one. The test will say if I need another resection because there is only so much medication therapy can do to heal my damaged intestines.
IBD is not the same as IBS. Although both people suffer, IBD (crohns or colitis) causes many more systemic issues. IBS is a reaction in the gut. I am not a disease but I have a disease, three diseases really.
I really wish people meant it when they say they would come and sit with me. I will just hit Facebook and trap someone in a message conversation. I will post pictures and history soon. Now I sit. HAPPY RUNNING!